Retired neurology consultant Dr. Jim Morrow has called for a government-led redress scheme to support families harmed by the epilepsy drug sodium valproate, citing its teratogenic effects that can lead to physical abnormalities and developmental issues in children.
Morrow, who established the UK Epilepsy and Pregnancy Register in 1996, described the lack of action on redress as a "scandal." The register's findings indicated that approximately 10% of pregnancies involving valproate resulted in physical abnormalities, with over 30% of children experiencing special educational needs, speech, and learning difficulties.
"This drug has been around for about 50 years and the problems weren't recognised for 30-so years, with another 10 years before any recommendations were made, so the doctors weren't informed so they couldn't really inform the patients," Morrow stated. He emphasized that some women with epilepsy face a difficult choice, as certain seizure types may only respond to sodium valproate, despite the risks associated with its use during pregnancy.
Morrow suggested that while a redress scheme is not a devolved matter, Northern Ireland, having been instrumental in exposing the issue, could take the lead in establishing an independent scheme. He envisions a redress scheme that extends beyond financial compensation to include support for caregivers, home adaptations, and specialized educational services.
Susan Jamison, one of the women affected, shared that she was not informed about the potential consequences of the drug when she was pregnant. The medicine now carries warnings, but the long-term impact on families continues to be a significant concern.