Brooke Eby, ALS Advocate and Internet Star, Dies at 37

Brooke Eby, an internet personality who gained a following for openly sharing her experiences with amyotrophic lateral sclerosis (ALS), has died at 37. Her death was confirmed by her sister to The New York Times.

The ALS Network announced Eby's passing, highlighting her role as an "extraordinary advocate, storyteller, community builder, and friend." The organization stated that Eby's "honesty, humor and determination changed how countless people understood ALS."

Eby was diagnosed with ALS, a progressive neurodegenerative disease, at the age of 33. She documented her journey with the condition on social media platforms, offering what the ALS Network described as an "unfiltered window into living with ALS." According to the network, Eby had the ability to convey difficult realities, address misconceptions, and provide humor, often within a single post.

Eby first experienced warning signs of ALS three years before her diagnosis in 2022. Her openness about her struggle resonated with many online, who remembered her for speaking with "fearless honesty."